The Story That Launched A Soul’s Calling

On September 30th, 2013, I sat on my couch and a quiet voice inside my soul started to get louder and louder. Finally, it was so loud that it drowned out the television and I let my soul pour out onto paper. This is what my soul wrote and I had no idea that it would fuel a fire in me that would ignite a passion I never knew I had.

Almost 18 years ago, I “met” a boy 900 miles away through the Internet. He told me he was born with a terminal childhood illness called Cystic Fibrosis and that the average life expectancy was 32.5 years old. He was 21 and it was too late.. I was already in love with him.

15 years ago, I left everything and everyone I knew back in New York, for this boy… For love.

14 years ago, I married the “terminal” boy… To me, there was no such thing as “terminal” when it comes to love…

12 years ago, this boy was listed for a double lung transplant. His lungs were failing but not the love in his spirit.

11 years ago, while on oxygen full-time and going to work on IVs, this boy caught pneumonia and was put on life support. For 9 weeks in the hospital, the doctors told me that he wouldn’t make it. But, we knew a secret… Love never dies.. And, after 9 months with machines breathing for him, we weaned him off machines and back on normal oxygen. Love gives breath to life.

Almost 9 years ago, that boy received a call that would change his life… After 3.5 years of waiting, they found an organ donor. Through the love of a stranger, that boy was given a miracle. Loved turned a boy into a man.

Almost 1 year ago, that man was rushed to the hospital in unimaginable pain… To find out his had Stage 4 Lymphoma. He was littered with huge tumors from his neck to his leg. Love got him through the extensive chemotherapy that threw his body turmoil and risked his miracle lungs.

Tomorrow, this 39-year young man, my husband and best friend, will go through a procedure to room an infected stent in his right transplanted lung that is risking his life. And, even though I won’t be able to see him wheeled off for the early-morning procedure, I will be waiting there when he gets out… With love in every fiber of my being… A love beyond any measure.

For it is love that brought us together… No matter the distance. It was love that kept us holding on when so many told us to let go… of life and each other. It is love that will continue to keep us connected for eternity.

Always believe in love.


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